Newsletter
June/July 1998
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Click here for a text only version of this newsletter

Feature Articles:

Faking Pain and Suffering in Support Groups on the Internet
Hear It! Read It!
from Concerned Counseling

Assistive Media: A note from the founder
Hear It! Read It!
by David Erdody

Idealist.org - 13,000 Organizations Under One Roof
Hear It! Read It!
by
Russ Finkelstein
Director of Internet Outreach
Action Without Borders

The American Style Of Change
Hear It! Read It!
and
Ancient Symbol Of Truth
Hear It! Read It!
by Nancy Weber, R.N. , President, Holistic Alliance International

Ted Kennedy Jr.
Addresses - Challenge for Disabled

Hear It! Read It!
by Nancy Denofio

Ginkgo Biloba Facts
Hear It! Read It!

Past Issues NEW

Other MedSupport FSF Web Pages

What's New at MedSupport FSF? Lots!

Listen to this announcement

We are pleased to announce our move to a new server.. our very own  server as well as our all new chat rooms that will be open hopefully by the time this newletter is due, on June 1or shortly after. We will be moving our forums to the new server also and thank those wonderful people at  Proxicom for the donation of the software and the server space all these months. We would like to thank Pan.com and Perry in particular for putting up with us these last few years and most of all, thank you Multiple Sclerosis Foundation for making this all possible.

You will see in this issue articles by executive members of several nonprofit organizations and also a couple of darned good for profit ones. We believe that only by working together, with the same goals and caring, can we truly make a difference. We believe there should be no competition between nonprofits but that all should exist only for the purpose of helping others.

It is our hope and dream that more and more nonprofits and for profits join us in truly working for the individuals who need us the most, those to whom MedSupport FSF International is dedicated... those whose lives have been affected in some way by Multiple Sclerosis.

Susan J. Mark
President and CEO

MedSupport FSF International Leads the Way With Audio!

Listen to this story in real audio

MedSupport FSF International, the first and only nonprofit to offer 24 hour moderated support groups on the Internet and 24 hr. phone support for those with Multiple Sclerosis once again paves the way by announcing today our intent to add audio.

With the help of with Assistive Media (http://www.assistivemedia.org) we will provide all our newsletters and articles in the future in real audio format to make it easier for those with visual problems to access.

We are very proud to be taking this step and happy to be able to bring you this service free of charge. With this issue of the newsletter, which is the first in both text and audio, we are also releasing our library of articles in audio with many more on the way.

AAN MEETING: Treatment With Higher Dose Rebif Reduces MS Activity

New results from the PRISMS study, the largest clinical trial completed in relapsing-remitting multiple sclerosis (MS), were presented today at the 50th annual meeting of the American Academy of Neurology. Read the full story or  LISTEN.

Prescription For Wellness
by Nancy Weber, R.N, President HAI

Stress is usually defined in conversation as the villain that is destroying one's life. However the actual facts demonstrate that it is not the monster we need to slaughter, but rather the power we need to harness and discipline.
Read the Article or LISTEN.
Visit the HAI website!   

Counter-acting / Neutralising Antibodies
by B.Arnason.MD Listen to the article

Research to date, suggests that the immune system is both intricately and crucially involved in MS. The treatments being put forward are understandably involved with immune reactions.

Our immune system is dynamic and alert. Foreign substances need only be very slightly different and they will prompt fighting cells from the immune system to come forward. Neutralising refers to an activity that is 'counter-active'. In the recent past, many clinicians have taken the appearance of neutralising antibodies during Beta Interferon treatment as a definite marker of loss of therapeutic effect, and a reason to discontinue therapy. However, there is substantial evidence that this is not true. Initially, it is estimated that neutralising antibodies will develop in up to one third of patients receiving Interferon therapy, and much effort has been made to discover when and why they develop.

Clear clinical guidelines for the management of patients who become antibody positive are needed. Small quantities of antibodies are often found in anyone. During Interferon treatment, there may be a transient increase in antibody levels but they can also sporadically decrease and then disappear. It is becoming increasingly obvious that levels of antibodies against the Interferon treatment are fluctuant and unpredictable.

A large group of neurologists internationally agree that Interferon antibodies may be associated with loss of efficacy in some circumstances in some patients, but there is no clear or consistent correlation between the finding of antibodies and the client's clinical status. At this present time it would appear that clinical status is still the defining factor for continuing or otherwise Beta Interferon therapy. There needs to be far more clarity between laboratories for the measurement both Interferon levels and neutralising antibodies before any further recommendations can be made on this subject.

As these treatments become available, issues such as this need clarification.

International MS Journal Vol4 (2) ed. 
-NZ Medical Bulletin

1998 MedSupport FSF International

New Feature!
Listen  to this newsletter in real audio!
 

You will need to download the real audio player for this feature...it's free!


Then click here to listen to this newsletter in it's entirety
or click on the Listen link on each article.

MedSupport FSF International, Inc. is a 501c3 nonprofit organization dedicated to educating, assisting and providing
24 hr. support groups via interactive forums and chat rooms on the WWW.

Visit our MS forums:

New Member Introductions
and Welcome Center

Ask the Doctor!

Avonex,Copaxone and Betaseron

Benign MS Support

Bowel and Bladder Problems

Cognitive Dysfunction and Solutions

Depression and MS

Equipment Donation
and Swap

General Medical Forum

MedSupport Kids

MS Alternatives

MS Caregiver's Support

MS...Unplugged

Pain and MS

Patient Advocacy

Poems, Celebrations, Smiles!

MedSupport FSF Conference
Schedule

PART II -- Multiple Sclerosis Foundation’s Internet Educational Series

Listen to this article

On Wednesday, June 24, 1998 at 2:00 PM, Central Time,    Dr. Annette M.Howard, Strategies of Managing Multiple Sclerosis".

Dr. Howard is the Chief  Administrative Neurology Resident at Baylor College  and her private  practice encompasses General Neurology and Multiple Sclerosis.

You will be able to access  his program through the Multiple Sclerosis Foundation’s home page  or through the MedSupport FSF Homepage   the day of the conference.

Dr. Howard’s audio and slide presentation will cover recent research studies, drug therapies, symptom management and sexual dysfunction.

Please either e-mail your questions for Dr. Howard in advance of this program to: mssupport@msfacts.org or during the live performance.

If you are unable to listen to the live program, you may hear the archived presentation at a later date at the MSF website.

This educational series is made possible by an unrestricted grant from TevaMarion Partners.

 

This newsletter may be copied to other sites replublised in its entirety only as long as it is not changed in any way.

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